Health and Care Research



What is health and care research and why is it important?

Research is a systematic investigation that creates new knowledge or deepens our knowledge about a problem or issue. It involves designing the study’s approach, planning the most appropriate methods to gather data, recruiting participants ethically, and analysing the data using established methods that provide valid and reliable results.


Health and care research adds to our knowledge and understanding about diagnoses, treatments and care, and people’s lived experiences. This knowledge helps us to deliver better services and contributes to the best health and wellbeing for people. Publishing the learning from research widely can positively impact health and care locally, regionally, nationally and internationally.


NHS England’s Long-Term Plan states an ambition to increase the numbers of people participating in research to 1 million people registering their interest by 2023/24. The government has set out the UK research vision (Saving and Improving Lives: The Future of UK Clinical Research Delivery - GOV.UK (www.gov.uk)) and has outlined the need to build on the learning from the COVID-19 pandemic, ensuring that NHS England has a strong commitment to increasing public participation in research. The success and high profile of public interest in research has been evidenced in the COVID-19 vaccine and treatment programmes. NHS England are working with other health sector partners to ensure research becomes an increasingly integral aspect of healthcare provision.


There is a specific need to increase the diversity of people who get involved in research, both as research recruits, and in study design. We know there is a prevalence of white, older people who get involved in research. Without diverse participants in research, there is a risk that research outcomes will not be as effective across diverse population groups and that research trials will not be designed to meet the needs of a diverse population.


Research in Suffolk and North East Essex

The ‘Community Voices in Research’ programme, funded by NHS England and developed in partnership with NHS Suffolk and North East Essex Integrated Care Board, aims to tackle the under-representation in research among diverse groups and communities in Suffolk and North East Essex, by increasing awareness and motivation to participate in research.


Community-led organisations in Suffolk and North East Essex were funded and trained to become community research champions. By facilitating conversations about health research amongst members of their community the aim was to:


  • understand what research means to different communities.
  • discover what areas of research are a priority for different communities.
  • understand the barriers people face engaging in health research.
  • discovering how these barriers can be overcome.


The programme enabled us to gather insight from an extensive range of communities and in total the 19 projects held over 1,000 conversations with people who face barriers to participating in research.



Get Involved - Be part of Research

What is Be Part of Research?

Be Part of Research is a UK-wide service that helps people understand what research is and what it might mean to take part. It also shows what research is currently happening across the UK.


You can create a free account or search for trials and studies into health conditions you’re interested in, at locations near you.


Be Part of Research is run by the National Institute for Health and Care Research (NIHR), in collaboration with the NHS and devolved administrations in Scotland, Wales and Northern Ireland. The mission of the NIHR is to improve the health and wealth of the nation through research. Be Part of Research is funded by the UK government, through the Department of Health and Social Care (DHSC).


Why take part in research?

Every time someone receives treatment for a health condition, it's because of the many people who take part in health and care research.


Research is key to developing new treatments, finding better ways to manage health conditions and providing better care. Or preventing people from developing conditions in the first place. Without research, there would be no Covid vaccines, or no new treatments for cancer. But it's the people who take part in health research who make these vital discoveries possible. By taking part, you can help give people healthier lives - now, and in the future. It's easy to get involved - simply register with Be Part of Research at https://bepartofresearch.nihr.ac.uk/join


There are many ways you can get involved:

  • Click on the Subscribe button to the right of the screen to stay informed about health and care research in Suffolk and North East Essex.
  • Click on the Register button and participate on Let's Talk SNEE to stay informed about wider health and social care in Suffolk and North East Essex.
  • Find out more about our Suffolk and North East Essex Research Engagement Network by completing the form below.



What is health and care research and why is it important?

Research is a systematic investigation that creates new knowledge or deepens our knowledge about a problem or issue. It involves designing the study’s approach, planning the most appropriate methods to gather data, recruiting participants ethically, and analysing the data using established methods that provide valid and reliable results.


Health and care research adds to our knowledge and understanding about diagnoses, treatments and care, and people’s lived experiences. This knowledge helps us to deliver better services and contributes to the best health and wellbeing for people. Publishing the learning from research widely can positively impact health and care locally, regionally, nationally and internationally.


NHS England’s Long-Term Plan states an ambition to increase the numbers of people participating in research to 1 million people registering their interest by 2023/24. The government has set out the UK research vision (Saving and Improving Lives: The Future of UK Clinical Research Delivery - GOV.UK (www.gov.uk)) and has outlined the need to build on the learning from the COVID-19 pandemic, ensuring that NHS England has a strong commitment to increasing public participation in research. The success and high profile of public interest in research has been evidenced in the COVID-19 vaccine and treatment programmes. NHS England are working with other health sector partners to ensure research becomes an increasingly integral aspect of healthcare provision.


There is a specific need to increase the diversity of people who get involved in research, both as research recruits, and in study design. We know there is a prevalence of white, older people who get involved in research. Without diverse participants in research, there is a risk that research outcomes will not be as effective across diverse population groups and that research trials will not be designed to meet the needs of a diverse population.


Research in Suffolk and North East Essex

The ‘Community Voices in Research’ programme, funded by NHS England and developed in partnership with NHS Suffolk and North East Essex Integrated Care Board, aims to tackle the under-representation in research among diverse groups and communities in Suffolk and North East Essex, by increasing awareness and motivation to participate in research.


Community-led organisations in Suffolk and North East Essex were funded and trained to become community research champions. By facilitating conversations about health research amongst members of their community the aim was to:


  • understand what research means to different communities.
  • discover what areas of research are a priority for different communities.
  • understand the barriers people face engaging in health research.
  • discovering how these barriers can be overcome.


The programme enabled us to gather insight from an extensive range of communities and in total the 19 projects held over 1,000 conversations with people who face barriers to participating in research.



Get Involved - Be part of Research

What is Be Part of Research?

Be Part of Research is a UK-wide service that helps people understand what research is and what it might mean to take part. It also shows what research is currently happening across the UK.


You can create a free account or search for trials and studies into health conditions you’re interested in, at locations near you.


Be Part of Research is run by the National Institute for Health and Care Research (NIHR), in collaboration with the NHS and devolved administrations in Scotland, Wales and Northern Ireland. The mission of the NIHR is to improve the health and wealth of the nation through research. Be Part of Research is funded by the UK government, through the Department of Health and Social Care (DHSC).


Why take part in research?

Every time someone receives treatment for a health condition, it's because of the many people who take part in health and care research.


Research is key to developing new treatments, finding better ways to manage health conditions and providing better care. Or preventing people from developing conditions in the first place. Without research, there would be no Covid vaccines, or no new treatments for cancer. But it's the people who take part in health research who make these vital discoveries possible. By taking part, you can help give people healthier lives - now, and in the future. It's easy to get involved - simply register with Be Part of Research at https://bepartofresearch.nihr.ac.uk/join


There are many ways you can get involved:

  • Click on the Subscribe button to the right of the screen to stay informed about health and care research in Suffolk and North East Essex.
  • Click on the Register button and participate on Let's Talk SNEE to stay informed about wider health and social care in Suffolk and North East Essex.
  • Find out more about our Suffolk and North East Essex Research Engagement Network by completing the form below.
  • Impact of electronic patient records (EPRs) on hospitals within the NHS

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    Impact of electronic patient records (EPRs) on hospitals within the NHS

    The Health Foundation is conducting a project to understand the impact of electronic patient records (EPRs) on hospitals within the NHS.

    “We would like to invite you to a one-hour phone call to discuss your views and experiences with EPRs.

    In particular, we are interested in:

    • How EPRs affect the accuracy and completeness of information in your medical record
    • Whether EPRs influence how quickly you are seen or receive treatment

    We are hoping to speak to people who have had a hospital appointment within the last 3 months in a hospital that uses electronic patient records.

    We would like to speak to individuals in January 2026.

    If you would like to participate or learn more, please email Sarah Opie-Martin: sarah.opie-martin@health.org.uk

  • Is a career in research for me? - social care/work

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    Date & Time: Feb 26, 2026 10:30 AM

    Description
    This 90-minute webinar is for anyone interested in exploring research as part of their career in social care and/or social work.

    The NIHR funds world-leading health and social care research that improves people's health and wellbeing, while also promoting economic growth. We also support research careers, offering opportunities to develop new skills, access training and funding, and join a supportive network, while contributing to research that has real-world impact.

    The webinar will cover:


    • insights into life as a research professional, shared by researchers at different career stages
    • an overview of research career pathways and what research work looks like in practice - key opportunities and challenges within research careers
    Attend to discover:

    • first-hand perspectives on what it’s really like to work in research
    • the range of research roles and entry points available to those new to the field
    • our role in supporting individuals to develop research skills and career development
    You will also have the opportunity to ask questions of the presenters at the end. The webinar will be chaired by Catherine Robinson, Professor of Social Care Research at the University of Manchester.


    Register here: https://bit.ly/49Cwg5f

  • Learnings from DARE UK’s pilot public dialogue on AI

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    Collaboration Cafe: Learnings from DARE UK’s pilot public dialogue on AI

    January 29 from 13:00pm-14:30, online £30 honoraria



    Discuss early findings from DARE UK’s pilot public dialogue on AI and how these insights will inform a wider national dialogue

    About the event

    This session will look at how Artificial Intelligence (AI) is being introduced and used in Trusted Research Environments (TREs), share the initial findings from DARE UK’s Pilot Public Dialogue on AI and develop the focus of their wider Public Dialogue on AI, which will take place UK-wide over the course of 2026.

    Participation at this event by public contributors attracts an honoraria of a £30 voucher per session, following HDR UK rates, with only UK participants able to claim this payment. Participants will receive an email from DARE UK following the event to process the payment.


    Event objectives

    • Share the findings of DARE UK’s Pilot Public Dialogue on AI;
    • Develop questions to inform the wider UK-wide Public Dialogue on AI.

    Who should attend

    • TREvolution technical team members;
    • Public Advisory Group members;
    • Members of the public.

    Learn more & register: https://www.eventbrite.co.uk/e/learnings-from-dare-uks-pilot-public-dialogue-on-ai-tickets-1980078919350?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=ebdsshcopyurl

  • Developing an inclusive health and care research system with Black African Diaspora communities

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    People from Black African Diaspora communities are currently not well represented in health and social care research. Find out about a project led by Warwick Medical School to better understand the needs of these communities and to make health and social care research more inclusive.

    Find out more about this work: https://warwick.ac.uk/fac/sci/med/research/hscience/apc/qualityandsafety/acheritageresearch/


  • TRExt

    supporting image

    A computer showing notes illustration Public Involvement Opportunity - TRExt

    This opportunity is for people who are...

    • Aged 18 years or over;
    • Interested in public involvement and engagement specifically with lived experience in the uses of information gathered from personal records.
    • Living in the UK.

    TRExt is a system to help computers understand messy text (like doctor’s notes) safely, so researchers can learn from it without risking privacy.

    In this study (a collaboration between University of Nottingham, Swansea University, Kings College London and Hyper Unison), we aim to collect the views and experiences of members of the public on the software and AI we are using in the TRExt project, so we can address any concerns and improve the automatic processing of sensitive information.

    This study is a collaboration between University of Nottingham, Swansea University, Kings College London and Hyper Unison.

    What is the opportunity?

    We’re putting people at the heart of the TRExt project. Our goal is to work with the public, researchers, clinicians, and technical experts to create tools that are useful, safe, and trustworthy. By joining our PIE workshop, you’ll play a vital role in shaping the project—helping guide decisions, identify potential risks, and ensure the benefits are clear and meaningful. Your input will influence how we accelerate research while protecting privacy and using AI responsibly. This is your chance to make a real impact on the future of health data research and ensure it reflects the needs and values of the people it serves.

    When and where

    You will be expected to attend up to three online meetings before the end of April, where you’ll discuss, comment, and give feedback on the project presented by the TRExt research team. Meetings will take place once a month between 10:00 am and 12:00 pm, including a comfort break.

    The first meeting is scheduled for 30th January, with further dates in February and March arranged based on the group’s joint availability.

    All workshops will be conducted in English; it is essential you are able to understand and give feedback verbally or written in English.

    Renumeration

    £25 per hour for your time and contribution for each meeting attended.

    How to apply

    Please follow the link button below to complete and submit your application form by midday on Friday 16th January 2026:

    https://forms.office.com/pages/responsepage.aspx?id=LrXKu76f1kOi859mxD3yaOqFRVa96idFoih8vhm0jw9UQzJZVzRLVUVVNk9XNVk4TTZTMTBaUVBLUy4u&route=shorturl

    If you have any queries, please contact claire.newman@swansea.ac.uk

  • RHITE: a public register for individuals interested in taking part in brain injury research

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    RHITE: Register for Healthcare Involvement and Technology Evaluation

    For Patients, Public & Professionals

    About RHITE

    RHITE is a public register for individuals interested in taking part in brain injury research. By joining RHITE, you can play an active role in medical research and improve health outcomes.

    RHITE has been supported by the NIHR HealthTech Research Centre in Brain Injury in partnership with Orion MedTech, a not-for-profit Community Interest Company.

    Since the launch of the new NIHR HRC in Brain Injury, RHITE has been updated. Through the new Orion HealthHub you will have more control over your registration preferences and can amend your registered details.

    The NIHR HealthTech Research Centres have replaced the MedTech and In Vitro Diagnostics Co-operatives (MICs), which came to an end on 31 March 2024.

    Register your interest

    By signing up to RHITE using the form below, you are helping researchers and innovators to understand more about neurological health and care conditions.

    Sign up form: https://orion.net/rhite

  • InFORMed: Redesigning Consent to Research

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    *This information is from inFORMed, a project based in Australia, so not all information will be 100% applicable to a UK audience. But, the work comes highly recommended.*

    Full details about the project can be found on the inFORMed website: https://www.informedpicf.com.au/

    The InFORMed Project template has been developed to support a participant-centred, simplified, national Participant Information Consent Form (PICF).

    "Our aim is to improve the efficiency and impact of health and medical research in Australia by making it easier for consumers to make decisions about participation."

    Simplifying Participant Information and Consent Forms

    Deciding whether to participate in research should be supported by information that is clear, simple and easy to navigate. Yet current Participant Information and Consent Forms (PICFs) are often the opposite: long, complex, and difficult to understand. The CT:IQ InFORMed Project is developing templates and guidance to assist in the creation of more participant-centric PICFs.

    CT:IQ (Clinical Trials: Impact & Quality) is a collaborative group of stakeholders with the aim of improving the impact and quality of clinical trials in Australia. CT:IQ comprises more than 50 member organisations and individuals who come together to pursue projects that will promote efficient, effective, and participant-centred, clinical trials.

    CT:IQ and the project team are proud to release the InFORMed template and user guide for use by the Australian health and medical research sector.

    The InFORMed Project template has been developed to support a participant-centred, simplified, national PICF. Our aim is to improve the efficiency and impact of health and medical research in Australia by making it easier for consumers to make decisions about participation.

    The template and user guide have been through a robust development process, including consumer consultation and beta-testing. They are suitable for use across a wide range of Australian health and medical research projects.

    DOWNLOAD InFORMed Project Template and User Guide

    Here are examples of how the template has been used in the context of different research projects - for a clinical drug trial and for a low-risk social science study. Please note, these are examples only and should not be used for IMPEDE-PKD or Beyond the Form study purposes.

  • Is my project research? What approvals and decisions do I need?

    Is my project research?

    One of the first steps in deciding which approvals you need for your project is to determine whether it is classed as research, and therefore whether it should be managed as such. The responsibility for determining whether a project is classed as research lies with the managing organisation. For studies that are determined to be research, the managing organisation would then accept the role of sponsor.

    To assist organisations in determining whether a project is research, we have provided this decision tool. So long as the information you enter is correct, the outcome of the decision tool can be taken as authoritative, and you do not need to seek further confirmation.

    Where a project will not be managed as research there is no need to apply for HRA Approval or to an NHS REC. However, you should contact the clinical governance or research and development (R&D) office of the organisation at which the project will be conducted to discuss what other local review arrangements or sources of advice may apply. For example, there may be standard guidelines on the conduct of clinical audit. The Caldicott Guardian will be a source of advice on the use of patient data.

    For both research and non-research, if your project will involve the use of patient data without consent you may still need a recommendation from the Confidentiality Advisory Group (CAG).

    My project is categorised as research

    If your research project is:

    • a Clinical Trial of an Investigational Medicinal Product (CTIMP) (with the exception of Phase 1 trials in healthy volunteers taking place outside the NHS)
    • a Clinical Investigation or other study of a Medical Device
    • a combined trial of an Investigational Medicinal Product and an Investigational Medical Device
    • a Clinical Trial to study a novel intervention or randomised Clinical Trial to compare interventions in clinical practice
    • a basic science study involving procedures with human participants
    • a study administering questionnaires/interviews for quantitative analysis, or using mixed qualitative/quantitative methodology
    • a study involving qualitative methods only
    • a study limited to working with human tissue samples (or other human biological samples) and data (specific project only)
    • a study limited to working with data (specific project only).

    Then you will need to apply for HRA Approval

    If your project does not fall into the categories above but is:

    • a Research Tissue Bank;
    • a Research Database; or
    • taking place in a non-NHS setting (a Phase 1 clinical trial in health volunteers, for example)


    Then you will not need HRA Approval but may still need approval from a Research Ethics Committee.

    If your research project involves accessing confidential patient information without consent in England and Wales, you will need to apply to the Confidentiality Advisory Group (CAG).

    If your study will involve ionising radiation research exposures you may be eligible to apply for Radiation Assurance, which is currently going through a phased roll-out.

    If your research project is a CTIMP then you may be eligible to apply for Pharmacy Assurance, which is currently going through a phased roll-out.

    For student studies undertaken primarily for the purpose of obtaining an educational qualification there is additional information available here.

    If you are still unsure about what approvals and decisions you need from the HRA, please email the HRA queries line.

  • Singing for Menopause

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    Singing For Menopause

    Evaluating the Impact of Participation in Group Singing on Menopausal Symptoms: A 12-session Comparative Study


    Menopause represents a critical life stage for women, often accompanied by a range of physical, emotional and psychosocial challenges such as hot flushes, anxiety, mood swings, and a sense of loss. These changes can negatively impact quality of life and social participation. NICE guidelines recommend HRT, CBT and physical activity to treat symptoms of menopause. Many women are seeking knowledge and empowerment, and to find alternative options to manage their own symptoms.

    Creative and community-based interventions, like group singing, have shown potential for improving mental health and fostering social connection. Group singing has demonstrated benefits in reducing anxiety, enhancing mood, and improving overall well-being in dementia, and mental health. However, its feasibility and efficacy as a therapeutic intervention for menopause remains underexplored.

    Here’s where you come in…

    Hopefully, the line about seeking knowledge and empowerment, and finding alternative options to manage symptoms resonated with you? Community Pop Chorus are working in partnership with University of Essex, and we want to evaluate the effectiveness of a structured, 12 x 90-minute session, group-singing based intervention on reducing menopausal symptoms. We need women like you to help test this new programme. This is research, so naturally it will involve some questions… here are a few for starters:

    1. Would you like to explore topics relevant to your menopause symptoms like stress and anxiety, regulating emotions, self-confidence, brain fog, and more?
    2. Would it be helpful to find some new ways of managing your symptoms that don’t involve wearing lycra, meditating, or seeing a therapist?
    3. Could you benefit from coming together with other, like-minded women, in a supportive, friendly, and genuinely safe space to share your experiences?
    4. And would you like to do it all, whilst singing songs you know and love, the ones that have soundtracked your life?
    5. Would it be good to be part of the process of shaping and refining this new programme, to make it as helpful as possible to other women?

    If you find yourself nodding, then it’s you we need! Even if you’re a bit iffy about number 4, don’t worry, you definitely do not need to be a ‘singer’ to do this – whether you’re the person who mimes the hymns at weddings, or you have your own home-karaoke, there’s a place for you in this group. From Bridget Jones singing at the top of her voice eating ice-cream, to the mousey silent girl in Pitch Perfect, we’ve got you. For our research to be credible, we need absolute transparency and a level playing field, so there are a few criteria we need participants to meet, in order to take part.

    Participants – 45 women, aged 40-60, currently reporting moderate to severe menopausal symptoms. Criteria for participation:

    • Must be prepared to complete baseline assessment (Initial survey, etc)
    • Must sign consent form
    • Must NOT have a diagnosed cognitive disorder
    • Must NOT be currently using medication for mood or sleep (or have recently stopped using such medication)
    • *Must be able to attend the 12 in-person sessions, held in Suffolk – within 10 miles of Ipswich, between January and April 2026 (*if part of the Intervention group)

    The 45 participants will be split into 3 groups of 15.

    1. Control group – no intervention, usual practice (members of existing choirs) – will submit survey and data about symptoms.
    2. Intervention group – Participants in the 12-session structured programme
    3. Comparison group – NOT participants in any singing groups – will submit survey and data about symptoms.

    The in-person sessions start in January 2026, and take place on the following dates (all Saturday mornings, 9.30-11am):

    Session

    Schedule

    Venue

    Wk 1 - Orientation, assessments, introduction to singing

    10th January, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 2 - Stress & Anxiety Part 1

    24th January, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 3 - Stress & Anxiety Part 2

    31st January, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 4 - Mood & Emotional Regulation Part 1

    7th February, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 5 - Mood & Emotional Regulation Part 2

    14th February, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 6 - Mid-point Assessments, recap sessions so far and look ahead

    7th March, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 7 - Managing Relationships

    14th March, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 8 - Confidence Part 1

    21st March, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 9 - Confidence Part 2

    28th March, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 10 - Cognitive Engagement

    11th April, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 11 - Sleep & Relaxation

    18th April, 9.30-11am

    St Joseph’s College, Ipswich

    Wk 12 - Post-intervention Assessments, Reflections

    25th April, 9.30-11am

    St Joseph’s College, Ipswich

    WK 16 - Follow up Assessments (not in-person)

    23rd May



    We will ask for a nominal £5 per person, per 90-minute session towards costs (but don’t let finances be an obstacle to your participation, we will endeavour to support those unable to contribute financially).

    If you’re still reading, and still interested, please email Yula from Community Pop Chorus at sing@popchorus.co.uk to reserve your place in this first cohort of participants on the in-person programme.

  • Help shape a future falls prevention study

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    Help shape a future falls prevention study: NIHR HealthTech Research Centre (Brain Injury)

    We are inviting older adults and/or their family members or carers to take part in a 1-bour online discussion group. Your views will help us design a future clinical trial focused on preventing falls in older people.

    What the study is about

    Many older people fall and have to attend the emergency department to receive treatment for their injuries. We know that balance exercises can help older people become stronger and steadier and less likely to fall.

    Researchers at the University of Cambridge are trying to understand if we could teach these exercises to people who come to the emergency department to prevent them from falling again.

    Who we're looking for

    1. Older people who think they may be at risk of falling, or who have had a fall - perhaps even experience of having to come to the emergency department

    2. Family members, friends or carers of older people who may be affected.

    What taking part involves

    • Join a 1-hour online focus group on Wednesday, 21st Jan 2026 at 1.30pm.

    • Share your opinions on:

    o Who should be included in the future trial

    o What exercise would be acceptable and what would help you stick to it

    o What outcomes matter most ( e.g. falls needing hospital care, quality of life)

    o How trial information should be shared (e.g. written leaflets, videos).

    • Participants will receive £30 for taking part.

    How to express interest

    Email James Piercy: james@brainhrc.org

Page last updated: 15 Jan 2026, 03:57 PM