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Endometrial cancer 5 years on

I developed post menopausal (4years) bleeding in September 2016.

I immediately asked GP for referral. I was given a scan (no abnormality) and insisted on referral, until GP did internal speculum and was shocked enough with a visible lesion to refer urgently for gynae opinion (only because I insisted. She was not going to refer as 'everything was fine')


D and C and total oophero hysterectomy later and I was relieved of a stage 1a endometrial cancer and the planned followup for 5 years started which included only physical internal examination and history.

NO BLOOD TESTS for CA125

5 years later.. no recurrence all clear.

2 months after that I asked GP to refer for loin and epigastric pain which I thought might be renal.

Scan revealed what turns out to be stage 4 endometrial liver metastases, secondary cancer. I am really upset that routine followup did not include CA125 blood tests which, while false positives were the given reason for not using this test, would have shown this recurrent cancer well before it became Incurable.

I now have maybe 18 months to live with palliative chemotherapy.

I feel that having achieved "5 years cancer free" on paper I have ticked boxes for successful outcome for NHS local statisticians BUT I do not believe I was cancer free at 5 years, and this error should be corrected to save lives, and treatment costs.

I am a nurse who is currently unable to work due to my recurreng illness and the NHS can ill afford to lose any staff.

Please could routine followup policy for this condition be reviewed to reduce missed metastases.

Consultation has concluded