My Story – Multiple Myeloma

It began with a fall in 2017, no pain, just a sudden collapse. Weeks of worsening pain and repeated GP visits led nowhere until one doctor finally listened. A blood test revealed Multiple Myeloma, an incurable bone cancer. The diagnosis was a shock, not just to me but to my wife, who became my carer.

Treatment included chemotherapy, immune boosters, bone-strengthening drugs. I noticed I wasn’t as tall as I used to be, and my mobility worsened, but the medical team were brilliant, helping me recover enough to attend my son’s wedding abroad.

There were setbacks: infections, hospital stays … but I refused to give up. I found strength in peer support, joining meetings, starting a coffee group, and becoming someone others could talk to. One friend said I helped him through a dark phase and that meant a lot.

My family never let me feel alone. They’ve pushed my wheelchair, lifted my spirits, and kept me included. I’ve learned how important it is for newly diagnosed patients to talk to someone who’s been there, someone who can say, “It’s hard, but you’re not alone.”

I still go fishing, plan holidays, and enjoy life and I am no longer needle-phobic!

Key Messages:

  • Knowing your own body is important, trusting your instincts and speaking up can lead to earlier diagnosis.

  • Emotional and practical support from loved ones is vital throughout the cancer journey.

  • Peer support offers comfort, connection, and hope, especially for newly diagnosed patients.

  • Life with incurable cancer can still be full of joy, purpose, and meaningful relationships.