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We want to hear what you think our priorities should be for improving health & wellbeing where you live.
Share your ideas here and tell us about your experiences with health & wellbeing in Suffolk & North East Essex. 

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Patient Participation in Suffolk & North East Essex

Welcome to the Suffolk and North East Essex Pneumonia Vaccine conversation. The pneumococcal vaccine protects against serious and potentially fatal pneumococcal infections. It's also known as the pneumonia vaccine.Within the NHS Long Term Plan, respiratory disease is a key area of focus. It affects one in five people in England and is the third biggest cause of death. The priorities for respiratory disease set out in the NHS Long-Term Plan are:• Detection and diagnosis of respiratory problems earlier• Doing more to support those with respiratory disease to receive and use the right medication• Improving our response to pneumonia• Improving the reach and impact of pulmonary rehabilitationPneumonia continues to place huge pressure on the NHS – improving our response will help to relieve the pressure, particularly during winter. Pneumonia is a leading cause of admission to hospital, despite being avoidable in many cases. Pneumonia also disproportionally affects older people, with incidence doubling for those aged 85- 95 compared with those aged 65-69. Nationally, acute pneumonia admissions have risen by 35% since 2013 with stays in hospitals getting shorter, indicating admission may not have always been essential.Core20PLUS5 is a national NHS England approach to inform action to reduce healthcare inequalities at both national and system level. The approach defines a target population – the ‘Core20PLUS’ – and identifies ‘5’ focus clinical areas requiring accelerated improvement. One of key areas is Chronic respiratory disease, with a clear focus on Chronic Obstructive Pulmonary Disease (COPD) driving up uptake of COVID, flu and pneumonia vaccines to reduce infective exacerbations and emergency hospital admissions due to those exacerbations.As an Integrated Care System we are committed to ensuring eligible COPD patients have access to pneumonia vaccines and addressing heath inequalities. We would be interested to understand from your perspective if you have been experienced challenges or barriers in accessing the pneumonia vaccine service and what support is needed to address these issues.This is a place where you can join in the conversation and share your experiences, thoughts and ideas.Let's Talk Pneumonia Vaccine.

RES: Pneumonia Vaccine

We are exploring change to the Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) pathway for adults, and children and young people, in line with the new NICE Guidance published in 2021.ME and CFS:Are complex, long term, disabling diseases which can have a devastating impact on function and quality of life Affects many systems in the body including the brain, muscles, digestive, immune and cardiac systems Affects children, young people and adults, whatever their background80% of those affected are women and it is believed that prevalence may be higher in ethnic minority groupsIs the greatest cause of long-term sickness absence from schoolAffects everyone differentlyfor some people symptoms still allow them to carry out some activities for others (about 25%) symptoms mean that they are unable to leave their home or their bed Diagnosis can be made after symptoms have been present for three monthsFull recovery is rare (less than 10%), but many improve, especially with early diagnosis and careful management and support Classified by the World Health Organisation (WHO) as a neurological condition and placed by WHO under disorders of the nervous systemSymptoms include:Chronic, profound &amp; disabling fatigue which does not improve with rest or sleep Post exertional malaise (PEM) after activity in which the worsening of symptoms:is often delayed in onset by hours or daysis disproportionate to the activityhas a prolonged recovery time that may last hours, days, weeks or longercan be triggered by physical, cognitive, emotional and social activities, and sensory overloadUnrefreshing sleep/sleep disturbanceCognitive difficulties “brain fog”Pain (muscle, joint, nerve, headaches)Orthostatic intolerance, – difficulty in maintaining an upright position, especially when sitting and standing, affecting heart rate and blood pressure (for example POTS)Gastrointestinal problemsSensitivities to light, noise, touch, medicines &amp; chemicals Allergies and intolerancesCare, Support and ManagementThe Guidelines for the care of people with ME and CFS were rewritten by NICE and published in October 2021.NICE recommends that assessment and care and support planning should be carried out by a team which is trained and specialises in the care of people with ME and CFS. There is no cure for ME and CFS but symptoms can usually be managed. The ME and CFS specialist team will advise on management. This includes:Self management strategies such as pacing and energy management Medication for symptom control, (for example pain, sleep disturbance, orthostatic intolerance) Wellbeing support NICE also recommends that ongoing reviews by your GP of your care and support needs should be carried out at least annually for adults and every six months for children. This may need to be more often depending on severity and complexity. External References:NICE ME/CFS Guidelines: https://www.nice.org.uk/guidance/ng206/chapter/Recommendations#diagnosis ME Association: https://meassociation.org.uk/what-is-me-cfs/Emerge: https://www.emerge.org.au/what-is-mecfsWorld Health Organisation: https://me-pedia.org/wiki/World_Health_Organization 

Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) NICE Guidance

Shared Decision Making Audit